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LQTS
November 11, 2009

008We went to Jaidan’s cardiologist appt yesterday. He is 3 months and 2 weeks old… Weighs 15lbs, 9 oz & is 24″ long.
They did his 2nd EKG & his QT interval was the same as last time, which is also the same as Jareds. I guess they want the number under 450 (which is still high for a normal person) and Jaidan’s is 468. The dr. said it could possibly go down, but by 3 months old it’s a good indication of what it will be. ((I took a picture of this chart at the dr.s office))

photo

002

Blood pressure

The nurse acted like it wasn’t a question of him having it or not, but how bad it would be. I knew there was a 50/50 chance of him having it, but Idk, I was hoping he didn’t have it. (obviously!) The dr. isn’t worried about it and everyone is just kind of like ‘oh okay, same as Jared…’ Jared tells me it’s fine. And it is fine. I’m sooo greatful that it’s not life threatening (can be if you don’t know about it) but we know, we know what to look for, & he has a great dr. His whole family has been through it all before. But I’m still scared because I’VE never been through it! I’m already the over-protective insanely worried mom as it is. I can’t imagine having to look for any ‘episodes’! It makes me sad to think that we will never be going to one of Jaidan’s basketball games or soccer games… at least that’s how it is for Jared- he couldn’t play organized sports. He loved basketball and it was just ripped away from him. Jaidan could play now, but later on having to tell him he couldn’t play would be devastating for a 12/13/14 year old. Jared also reminds me that it’s come soo far in the last 10 years that by the time Jaidan is older it could be different. And who wants their child to have to get a pacemaker at 12/13/14 years old either?!?!

004

EKG

I do realize all of this thinking is superficial & the big picture is not about what makes us happy but about doing things to glorify God. And we will focus on that rather than what Jaidan may not be able to do.

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Rachel Latigo

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    I'm Rachel. In my 32 short years of life I've learned to never say never, go with the flow of life and to cherish every moment with the people I love. I'm all about learning... especially how I can be more faithful to God. We are currently in baby step 4, & 5 of FPU. I love photography, organizing, making photo books, homeschooling my kids & learning about natural living.
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